Part of my story was the fact that I initially didn't want the device. I refused to have another surgery, to have another scar, to be stuck in the hospital again. I was sick and tired of it - as I'm sure so many heart patients are. But eventually, after my doctors sat me down for close to two hours and explained how poorly my quality of life would be without it, I sucked it up and got it put in. The best decision I ever made.
|Beth Freeman interviewing me!|
|Sound crew and filming crew were wonderful!|
|The whole crew, myself and my dad!|
Another topic was the feat of the device going off when it didn't need to. I told them that I have a recalled lead, which means it could break much easier than the other leads because of how it was made. If a lead were to break, there is an even bigger chance of the device shocking when you don't need it. But I told them that I don't live in fear and neither should other patients. I don't stop myself from doing things I want to just because my device could go off. I told them that I follow the rules, no caffeine, no jumping, no rides that toss you from side to side and other rules, so I am taking all the precautions I can. If it goes off, it goes off. Worrying about it and stopping myself from living life isn't going to prevent it from happening, its just going to make me lose out on some amazing experiences.
I can honestly say that without this device, I would've either died, or if I had lived - my quality of life would not be nearly as great as it is now. One of the last questions was what I would tell someone who was on the fence about getting the device, I told them to get it. It's a scary idea to get surgery and to get a scar, but I have never once regretted getting the device.
I want to thank Beth Freeman. her team and Lucile Packard Children's Hospital for allowing me to be part of this amazing project!
Hope and Love,