To be honest, I'm not sure how I feel about trusting my health with a hospital that has lost my files and doesn't get back to us when we try to call or contact them. We had planned on waiting to go see the doctors up in California till after we visit Philadelphia but at this rate, my mom is starting to think we should go for a check up to California sooner rather than later. Plus on top of that, my sister also has an appointment with the doctors there and we don't want to keep putting that off either.
I think what is so frustrating to me is the wait. I feel so good lately but there is still a part of me that is nervous and anxious to get answers about whether or not I am in need of a transplant. I trust how my body feels and its a good sign that I do feel good - but that doesn't stop me from worrying and being anxious about what they will say. There is also that worry that they say no and won't accept me into their program? All of these months wasted waiting for a 'no' answer when we could've been spending this time looking for another center that will accept me.
The only upside to having to wait is that it gives me even more time to let me body heal and for me to get back to my baseline that I was at the beginning of this year. With a transplant center so far away, if I were to get listed (depending on what level) I may have to move there so I would be close to the center. Honestly, I don't think I'm at that point, but you never know. Having to move out to Philadelphia would be hard on my family and would be something that I would hate to do. Which is why, part of me doesn't mind not getting a doctor appoint but the other part of me just wants to get it done and over with.
While I'm waiting though, I've decided that I'm going to enjoy feeling as well as I am. Which is why on Tuesday I will be headed out to California for Spring Break with some friends from school. My dad will be putting up with all us girls during our trip to Disney Land which I promise to post lots of photos of!
Hope and Love