We are so used to Lucile Packard being so on the ball. We're able to directly e-mail the PH nurse, Michelle and she gets back to us either that day or the next. We're able to call the doctors, leave a message on their phone and either they or their nurse calls us back within a day or two. But we have not been able to have such easy communication with this hospital and it is so frustrating.
Perhaps this is merely a problem with the department in charge of appointments that are a little unorganized. I keep hoping that once we meet the doctors and nurses, my family will get actual contact information so they can talk to them directly when we need to. I am hoping that once I meet the transplant team I will be reassured, but as for right now - I'm unsure about whether or not I should trust a hospital that can't even send out a piece of paper telling me what time to show up for my appointment.
Hope and Love,